I need to find out if Lomotil is a drug that others with Crohn's take on a regular basis. I've been on Lomotil since my take down in 1990. I was taking 3-4 per day and went to the bathroom 7-14 times per day depending on whether I had an attack or not. Last January, I went to see a surgeon in Dallas to check my pouch and rect. because fo some pain I was experiencing in that area. Afterwards he said he was encouraged with what he saw, that my pouch was in good working order. This was confirmed by Dr. Shen a couple of years ago. I had been advised by an Oklahoma U. doctor here in OKC that I needed the bag. He was insisting that I needed an Ostomy. NOT TRUE. I am not seeing him anymore. Dr Shen said NO to the bag because I would end up with short gut syndrome. OK, question: the surgeon told me that the pain was because of the frequency of my BM's. He has many patients who take as many as 8 lomotils a day. He also said that I can supplement it with OTC Immodium and 1 pill of Fiber per day. It was like a miracle. Now, I don't go more than about 4 times a day and it is formed. I am able to hold it a lot longer than before if I needed to because of work or golf. My quality of life has changed for the better and significantly so. Anyone else has had this experience? I don't seem to have any allergic reaction to Lomotil at all.
I must add that I am on Cipro right now because I have been bleeding a bit, but all else is the same as I described above.
Jan, I would also like to hear from you on this. What say you?
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