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Reply to "Living with a bag...."

For most people "the bag" is just an imaginary projection. Until one lives with an ileostomy such statements such as "I'd rather die" are just so much bluster. For those who have had poorly functioning loop ileos they at least have some credibility, a poorly functioning ileostomy is a nightmare I had one for a while after disconnect but before excision at which time they did a stoma revision, even so I functioned better than with my J pouch. When I read what people go through to keep their J pouch or K pouch I just say to myself, that is/was not for me. There was a limit to what it was worth to me to keep my normal looking but not acting "function." But this is individual choice, I don't live in their skin and they don't live in mine. I ditched the J pouch after I saw my life contracting, it was that simple. I wish the J had worked for me, it didn't. I needed to move forward in life and two months after excision that is exactly what is happening. Would I rather not have the bag, of course. Hell I would rather have my colon UC and all back (lost to cancer) but we live with cards we are dealt and try to make the best hand we can.
Last edited by chiromancer
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