Reply to "Living with a bag...."

mgmt10Member

I think when people say things like that it's out of pure fear of the unknown. To be totally honest, I remember feeling so scared and horrified when I was waiting for my surgery date knowing I would have an ileostomy for a little while. But then when the time came and I had it, it wasn't the horror that I thought it was going to be. And I even had a tough time getting mine to behave itself. But if my j pouch fails me tomorrow I know now that I would be fine with a permanent ileo. I would just have to make sure I had a well constructed stoma (unlike my last one)!!

So in short, I totally hear you. But people are just freaked out about the unknown and the foreignness of it all. I would like to think they don't mean to hurt anyone with those comments but I can see how it could be hurtful to someone.

2/16/133:35 PM

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