Reply to "living between bm's"

It takes a while to feel better.  I was diagnosed with UC in April 2015 and had my first surgery in November that year.  So I barely got used to even having it, just one crazy flare that didn’t get better, even with biologics.  It’s been over 3 years since takedown and I have resumed most of my activities and more.  For me, it’s a little different because I am semi-retired, but the days I do work I take Lomotil to help get me through and I know where all the bathrooms are along the way since I am on the road.  I have gotten pretty good at holding it in longer, although it can get a little uncomfortable at times.  I occasionally have a little leakage, very rare.  Like others have said, give yourself time.  It’s a big adjustment for sure.  I will be 65 next month and go on 20 mile bike rides and climbed the Summit of Mt. Washington.  If I take my Lomotil and empty my pouch before I start, I have no issues even with eating and drinking along the way.  There are times when my diet causes more BM’s but for the most part things are good.  Bad timing with the flu, for sure.  Things should improve for you as you adjust!

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