@Jan Dollar posted:Sharon, since your autoimmune disease is not the typical IBD we see here, I doubt you will find much in the way of others with similar problems. While fatty liver disease and PSC is associated with UC, that is not your case. I also presume they have ruled out infectious hepatitis and autoimmune hepatitis, liver cancer, etc. your long surgical history probably is not a factor unless you now are having constrictions in the large veins or arteries in the portal circulation. Heart failure could also even be a player. Still, I would think they looked at all that.
It seems that you always seem to wind up with those rare maladies that have your docs scratching their heads. I wish I had more to offer you, other than to research hepatomegaly to see if any of the causes fit your crazy history.
I have had to deal with elevated liver enzymes, but my Dx was a straightforward nonalcoholic fatty liver disease. Hope you get this sorted out.
Jan
How can PSC be ruled out if her liver enzymes are elevated?