I hope you are all doing well. I see these messages are old, but they are applicable to me. I was diagnosed with Crohn's at age 52. I am 65 now. I was on Pentasa for years and Prednisone frequently. My diagnosis was questionable at this point whether it may be UC or indeterminate. Nonetheless, I opted for a J-pouch; surgery in 2017 and takedown 2018. I had a good year and a half; then pouchitis treated successfully off and on and then not more on variety of chronic antibiotic use. My symptoms are many and my scope 2 weeks ago show, once again, elongated and dilated blind loop with SIBO and other inflammation. Looks like a permanent ileostomy is in order. I hated the leaky loop ileostomy, but I understand the permanent one is much better. Thank you all for your info ON BCIR and K pouch. I am familiar with these and like the idea. With regards to insure of the anus, can I still sit on my bike seat; do squats and other athletic things? I swim (when I am well) laps. Is there something waterproof to go over the gauze?
I am scared of another operation. I have secondary Addison's from years on steroids so am on lifeline low dose steroid to keep me alive. I now heal very poorly.
Any help would be appreciated.
Gail