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Reply to "Life After J-Pouch Removal"

Although I had to have my J pouch removed, I strongly did not want to go the ileostomy route.  I did my research and opted to get a BCIR (similar to a K pouch) which does not require having an external bag.  There is nothing wrong with deciding to get an ileostomy and many people have had satisfactory results with one.  It is a personal decision best made after researching the available options.

Any surgery to remove a j pouch and sew up your bottom is complex and best performed by a surgeon who had done many of them.  For me, the surgery went very well, but took longer due to the presence of adhesions from prior surgeries.  I recovered quickly after my surgery and can do any of the things I enjoy and eat almost anything I want. I empty my pouch 4-5 times a day at my convenience with a small silicone catheter and cover the stoma with a small absorbent dressing.  I have had no leakage, skin irritation or the need to deal with the supplies needed for a conventional ileostomy.  The catheters and dressings cost me under $200 per year.  My GP found that I was low in iron, feritin and vitamin B-12, but oral supplements corrected that. I am not trying to “sell” you in the BCIR or K pouch, but these are two options you may want to learn more about.  Please feel free to send me a PM if you have any questions.

Bill

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