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Reply to "Leakage - any suggestions?"

Recent leakage…..

I have had my pouch since ‘18. Had many complications since. Still able to get along. However, recently I have been having some issues. I have been leaking at night. Has not happened like this since the beginning. On and off here and there. Much worse now. I do have an elongated pouch that creates bacteria problems resulting in daily cipro and Lamotil with rotation of Flagyl every three weeks. Also take Entyvio infusions every 8 weeks..
Any advice ???

It’s possible that the Cipro and Flagyl are no longer adequate alone. After about 5-6 years on Cipro I had to add Flagyl, and the combination has worked very well for me for a long time. Another option is to try switching to a biologic medication.

You don’t say when you take the Lomotil, but I’ve found it most helpful to generally take it only at bedtime. That seems to work best on the disturbing nighttime issues.

I also get benefit from a high dose of VSL #3, but I’m lucky enough to have insurance coverage for it. It’s very expensive otherwise.

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