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Reply to "Kock pouch/BCIR"

Dz20,
I am a 34 yr veteran of the k pouch, number 13 done by my surgeon. I was 18 at the time and had had a horrible time with my colon, IBD and constant incontinence so anything that could give me back control and my life was a godsend.
Like: NO bag, no appliances, no fuss, muss or skin irritations...for me that meant freedom
I eat pretty much most things, chew really well but if I don't then I just pluck the stuff out of the tube (the tube can drag out pretty much anything behind it. Stuff gets stuck in the holes and just comes out. Occasionnally the stuff that is too big will take a day or two to break down in the pouch and come out later...no biggie).
I sometimes use a blender or mixer to blend stuff when I am sick or lazy. I travel, live abroad, work 12hr days across the city and take public transportation both ways. Life is in the 'normal' catagory.
I only carry my tube, mini packets of lube and a syringe and/or a squirt-top water bottle with me. I fill the water bottle, lube the tube, pop it in, empty out, squirt the water through it, wipe the stoma and cover it with a folded up kleenex. Once the tube is rinced out I put it into a plastic pencil case and I am done. If I have been 'good' (read: chew, not eat silly stuff, drank enough fluids etc...then things just flow out...takes 1-3 mins)
Don't like: Well, it has been so long that I can barely remember life pre-pouch. I don't like it when my pouch is upset or when I needed repair surgery and no one in France was capapble of fixing it. I had a heck of a time and needed a lot of fixing. (my body, not my surgeon were the problem).
Yes, I am not like everyone else but then again I wasn't pre-pouch either. It is a pain when I can't find a decent bathroom, if the pouch has a problem it is harder to find a good doctor and you need to get used to it but once you get the nack you should be fine.
Hope that this helps
Sharon
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