Hi Scott, Thanks for replying. I was always under the impression if you had Crohns that you could not have a J pouch but I notice that some people seem to have both.
I do find with my J pouch that sometimes before I can have a BM , I have to wipe my butt first. Then sometimes the feces just leaks out without my realizing it.
My GP will not let me take NSAIDS because of the kidney disease. I try to take very little drugs as I seem to be so sensitive to them all. I take Omeprazole, Lomotil (for J pouch leaks), Felodipine 5 mg (can't handle 10mg), and kidney specialist just told me to stop taking my diuretic, Triam HCTZ as my sodium is so low.
I have always been very aware of the need to keep my electrolytes and since I had my J pouch put in, I have taken Gatorade, Bronson Vitamin C crystals with potassium, sodium and magnesium with my Metamucil.
Maybe another reason for my weakness and exhaustion which recently surfaced: Kidney specialist picked up on an irregular heartbeat. It was first found when I was in ER a while ago but apparently it is not all the time. Kidney Dr. suggested I ask my Gp to order a monitor for me and we are waiting for insurance approval of the monitor.
It is so hard to find out what is causing this weakness and exhaustion. It has basically stopped my life. I can hardly pull myself around and have to force myself to get things done. I am a recent widow and have two poodles, so I would like to find out what is wrong so that I can "get back into life". Been getting worse since this started in Feb. Thanks do the reply. Mary Loar J pouch done in 1984.