I had my pouch flipped over by Dr Cohen at Mt Sinai in 2008 after a couple of previous revisions and a failed revision here in France in 2000 where my stoma 'sunk in' about 2 inches into my abdomen. It twisted like a corkscrew and made intubation a nightmare. It took me 5 yrs to go back to Canada and have it fix by Dr C...So I did a lot of damage to the valve. Dr C first tried to change the stoma site and bring it back up to the surface (that worked great for 2 yrs) then I started having problems again (peristomal hernias) and he kept fixing them but eventually, they caused too much damage to the stoma and he flipped my pouch and created a new valve.
My problems were more hernia related (or my pouch slipping off of the wall) after that and I ended up finding a great surgeon here who was Mr Fix-it! He did about 5 different keyhole procedures on me over a 5 yr period. I am now a patchwork of mesh but my pouch seems to be working. Or at least surviving.
Now that both Dr C and my French miracle surgeon are in their 70's and retired, I pray that I never need a revision again...not sure who could or would do it for me!
Sharon