Excellent list! Thank you so much Sharon for taking the time to describe the demons of the valve. Frightening
I certainly have been guilty of undigested chunk of mushroom, an occasional lemonseed, or stringy onion that hangs outside the catheter holes. I say I'll never eat that food again – – or I'll spit it out after chewing it – – but give me another two weeks and I slip up. This list is a good reminder of how consistent and focused one must be with maintaining their K pouch.
It sounds like the crook in your valve has stabilized. Is that so and is it OK? I hope so. You don't need– – Nor deserve – –any more obstacles. Janet