To WillLive4Ever - You Are Not Alone! I feel like we've lived parallel lives - similar surgeries at similar times and both of our original surgeons have died. This is not an easy journey and if not for the support of this forum and the K-Pouchers on Facebook, I would have really felt lost. I've been through so much, but when I hear others talk of their challenges and their strength to get through it all I am inspired. They are my heroes and I will not let them down. So, write as much as you need to get your story out, because there are so many of us out there who really care. My last visit to the doctor was in December 2014. I went for another pouch scope and evaluation because of my leakage. I feel the scope was very thorough but still no definitive cause of my problem was seen. The surgeon spoke with the GI dr. who did the scope and was very concerned about this effecting my quality of life. He suggested we go back into surgery and look and see if there is a fistula that may not be showing up on my tests that he missed during my last surgery. He also suggested if he could not find anything wrong that he would revert the pouch back to a traditional ostomy. I told him that's not what I want. He told me I shouldn't worry because there's a 50/50 chance he'll find something and besides you're 59, already married and you have a very supportive husband. My thoughts - Wrong answer. I want my pouch and I want it fixed and I want my life back.