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Reply to "Just had surgery for K Pouch & revision of valve"

Hi, To all my fellow pouchers who responded to my last entry, It's been a year and eight months since my valve revision,reconstructed pouch and removal of my tubes & ovaries. The surgery done at Mt. Sini Hospital in NYC by Dr. Bauer was in their opinion a success. Unfortunately my opinion differs. I'm living with a "****ty" quality of life with leaks worse than before this surgery. I do use the breast pads along with a cut mini pad and a cotton round and t.p. and 3 pieces of paper tape. I sleep with a washcloth on top of all this too. I was continent for a bit more than 2 months after the surgery. From than on the leakage returned... gas, watery outflow, and regulayr poo too. I had 2 scopeings and a barium contrast study done sitting, standing and on my side by 2 other specialists who reported no leakage cause found. While at the office of these specialists, both doctors witnesses leakage but did not see where it was coming from. Dr.Bauer also filled my pouch with water and it did not leak while I was on the examination table. Here's my problem that I told to my surgeon...First, the camera used with the scope may have misses another fistula and the barium may be too thick to show a fistula. I do not have a medical degree but, the fact that the surgeon was not looking at my test results himself nor did he consult with his associates before throwing his hands up bothered me to tears. I haven't seen another doctor about this problem since last year when I was told that my doctor would not operate blindly ..without definitely seeing where the problem was. I had such a bad experience with the anesthesia and recovery ...my incision stayed open for three months and got infected and left a huge scar...I'm very much afraid to go through more of the same with no guarantee it will be any better than it is now.
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