I am reading all of your answer to Angie story and much information. sometimes I wonder if the success rate they say is real or based on what criteria. However , surgeon must continue to look for real solution to all IBD patient and post-surgery...
For leakage, I used to buy the breast feeding pad...they absorb lots of liquid...you my want to try it. there are many brands, usually the most expensive works better or are larger...
After reading all I worry even more about my state and what will I do. I have to go see back the specialist. Also I hear of no one with stone in the pouch... I am looking for way other than ultrasound (I heard it has many side effect on kidney and high blood pressure after)... I wonder if this is not increasing the problem of stenosis of the stoma and all. But Dr are so busy, that I have lots of difficulty being able to TALK to surgeon about option etc... I am frustrated, even discussing with department team... I am not in Ontario so for me to go there...and not have time with Dr to evaluate all is demoralising. I have much difficulty pulling myself up morally as ever in my life.
Since I was young I went through many surgery and continued to university and worked my way but now I am out of the system and I have no physical and morale strength in me. I cry regularly, I feel Dr don,t care and a surgery is highly risky and have no guarantee on anything anymore...beside I am scared of dying on the next one...so I want to evitate. I wished I could see 2 different Dr and have their full evaluation and opinion...
Anyhow, I think people with this illness must certainly unherite paradise in the other world because the suffering is so immongous...sorry for my French English typo...
Anyhow' don't give up, hope is essential to survival and things can change and I do believe in miracle and prayer!