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Reply to "Just had surgery for K Pouch & revision of valve"

Hi Aggie,
I am so sorry that you are back on the roller coaster again with the leaks...there could be many causes other than valve slippage or rips etc...you may have a functional shift in your abdominal muscle structure, meaning either an incisional hernia caused by or following the abdominal scar healing funkily or a peristomal hernia (around the stoma) that is shifting the position of the stoma so that it does not close properly or is pulling at an funny angel...third possibility is that your pouch might be 'down' or slipped off of the abdominal wall...so that the pouch is no longer anchored to the abdomen other than by the stoma which in turn gets pulled and pops open...all 3 are easy fixes through laporoscopic surgery and what I wish most for you is an easy fix right now...they need to do an opacification or contrast study with you laying flat, on your side, sitting and standing up...you also need to be able to chart your leaks...when in the day (before or after meals?), in what position you were when they happened (mine were only when I was overfull and squatting down to pick something up, so squat and lean forward...that told the doc that my pouch was down and twisted)...they may, in spite of it all not see the problem and therefore need to look closer but you need to get them to start with that.
Hope that this helps
Sharon
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