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Reply to "Just had surgery for K Pouch & revision of valve"

After going through a valve revision for my Koch pouch in Feb., and coming home with an infection and opened incision that JUST closed in June - I have now returned to the land of leaks. This is what I went into the surgery to repair in the first place! Very upset and searching for answers. Also had both ovaries & tubes removed at the time of the valve revision and pouch redone.
Had my redone pouch & valve scoped last monday. I was told it looks beautiful. No adhesions, blockages or fistulas. Brought the report and pictures to my surgeon. He called the GI dr. and also checked the stoma with a catheter to see how it was going in (fine). He's surprised and has no answers either. Had watery stool leaks & gas leaks every day and I'm emptying every 2-3 hours again to avoid accidents. I was advised to get "pure methyl cellulose to add to my diet to keep my stool firm & watch what I eat - similar to an IBS diet. I was told that with a K-pouch that doctors don't even concern themselves with gas leaks. So I handed the dr. a picture of my stained shorts to help him visualize my point. When I went to the pharmacist to see about getting pure methyl cellulose I got concerned with the chance of blockages. RX won't give it to me without first talking to surgeon & getting a prescription. My stool is not always watery (mostly in the morning after taking meds or after eating or not eating for awhile) but it is a hit or miss situation. I'm back to square one but worse because since the stoma was moved I can't feel a leak happening. The other disappointment is the dent left from the incision healing from the inside after it reopened post-op. Trying hard to keep my head straight and work on fixing things and not fall into major funk of self pity.
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