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Reply to "Just at a loss and can’t take this pain anymore"

@grandmaof1, you've described a very scary situation. I can say that the barium defecogram is nothing to dread. I had it and the manometry very recently at Columbia and the people administering it were very kind and considerate.   In my case a mucosal prolapse of up to 80% was made worse with straining. I'm waiting for a banding procedure, taking antibiotics, and doing much better by relaxing and not straining. Based on how things feel today I am optimistic that the pouch will work for me. But since take-down 6 months ago I've seriously considered an ostomy or K-pouch. What I've taken away most from this forum is that that circumstances change, outcomes vary quite a lot, and what is acceptable is unique to each of us.   I hope results of the tests will bring you answers and a clear path forward.

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