Reply to "Jpouch removal date and time set"

Its great to hear your progress is going good.  I am sure it is alot to deal with and not fast recovery.  I have a J pouch for 5 years and already my surgeon and GI dr r suggesting revision or removal.  I am going to have hernia fixed and he said I should think about then while he is opening me up.  I just don't know.  How many times would change bag and would it be the same amount of time as normal way.  I had trouble with stoma, alway sore and so much output.  Maybe that was because of the transition.  Not sure but they said my entire colon was diseased and have to remove all except a small end and that is what gives me all my pain, burning, bathroom time.  I feel my life is the bathroom.  When u dream about  finding where the bathroom is it is starting to be a nightmare.  

I do rejoice when I have good days and take advantage of the time.  But I think I have more bad than good and just can't live life. I have a window of time I know I need to be near a bathroom and want to be at home.  I can't take vacations or any overnight trip.  I always  watch what I eat and depending I get so much gas I don't even want to be around people.  So much for relationships.   

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