@Rachel1 posted:Hi everyone
I have had a perfect jpouch for 15 years due to uc.
2 years ago I developed a stricture at the outgoing anastomosis. It had been dilated a number if times and with each scope I had ulceration that was getting progressively worse. Until then each scope revealed a healthy pouch with zero inflammation and ulceration.
I had been treated with flagyl and the rifaxamin and my gi told me that the next drug would be biologics. I had been saying this whole time it felt structuaral.
so I get an appointment with dr Bo Shen who suggested that it was pouch prolapse ( super rare) this happens in 0.3 % of pouches. Tests confirm his theory and now I know it’s a structural issue that needs to be resolved . He suggests I travel to USA to have him treat it. ( I live in Australia) has anyone experiences this? Has anyone used Dr Shen for procedures?
thanks so much
Hi Rachel,
I had banding done by Shen for an anterior prolapse several months ago but my story and certainly outcome may not apply as I also had a sinusotomy done at the same time. I developed an ileus during the procedure (it was longer than they anticipated) and woke with terrible abdominal pain. Sent back to my hotel and was vomiting by the time I got to the car. I held off for several hours but couldn’t take it and had to go back to ED. I won’t share all the details but it was 3 days of poor care via the ED. Anyway no improvement in pouch function after the banding but then again I have an only partially treated sinus which may be causing problems. I haven’t given up on them at NYP and will likely go back for another shot at the sinus and banding. Some people required multiple treatments I guess. I imagine the banding itself was relatively painless and quick. My sinus gave them issues. I think the only risk to banding for you traveling so far is it doesn’t work. I wouldn’t worry about the procedure itself….despite my horror sorry. I seem to accumulate them so not a good point of reference! Good luck with your decision and hope you find relief.