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Reply to "JPouch or Ileostomy"

@Doug K posted:

Wow - thanks for sharing.  My ileostomy has been so easy, but I have decided to go with the JPouch, but if it fails to give me the quality of life I want, I can always go back to the ileostomy.  I hope I am in the 91%, but you seem to be doing well in the 9%.  Last 2 questions- did you ever try fiber to slow things down, and do you have control or ample time to make it to the bathroom?

Of course, any time! Let me know how everything goes. If I were you, I would keep the ostomy since you are not having any problems but if your heart is saying J-pouch surgery, then definitely follow your heart! And yeah I am doing great in the 9%, I have talked to other people in the 9% with me and they are doing great too- we are pretty happy. I am sure you will do great whatever group you may end up in. 

Yeah, I tried fiber to slow things down, I still fall between 13-20x a day though. Nothing really helps that situation for me but I have accepted that and learned to live with it. I was miserable when I had my colon and now that it is gone, I finally have peace. J-pouch surgery gave me ease. What I have now is way better then before. 

Yeah, I have time to make it to the bathroom just perfectly. I always go when I have my first urge so that gives me plenty of time. If I am waiting in line in a public place, I can wait in line until its my turn. If I am sleeping, my pouch wakes me up to go and I walk to the bathroom normally and use it without rushing to the bathroom. 

When I first got J-pouch surgery: I was RUNNING to the bathroom, leaking on myself, I had to wear diapers whenever I slept. That is only the early beginning though, things get better as time goes on; I do not have that anymore. Be very careful in the beginning and definitely watch out for butt burn, I would recommend diaper rash cream like sensicare skin barrier cream- that works wonders. 

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