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Reply to "JPouch or Ileostomy"

@Doug K posted:

Hi Lauren,

Thanks for sharing your story.  I am glad that you are doing well.  I appreciate your advice very much.  If I may, I would like to ask you a few questions if you are comfortable with that.  

Are you taking any medicines to slow down your bowel movements?  

For me, going 13x-20x a day would be very hard.  At least for me, I think it would be difficult to keep my current job.  I want a life without the appliance if possible, but the prospect of going 13x-20x scares me.  Are there any functionality issues with your JPouch?  Or is it just quicker transit time?  What issues did you have with the appliance?

Thanks Doug 

I would be more than happy to answer all of your questions. No question is off limits for me, so anything you need to be answered, ask me.

In my early takedown days, I would take Loperamide a lot, this was like almost 6 years ago. I was going probably around 30-40x but after the pouch healed up and everything stretched out pretty good its now 13-20x. Loperamide clogs me up now ironically lol so I do not take anything to slow my BMS down. 

Every job should accommodate their employees but I know life is not always fair unfortunately and bosses can be $%#@! But my case is extremely rare (9% chance) but it is still a possibility for you. 

I never had any major problems with my Pouch, if I do not drink enough water I get constipated but nothing major. I did have 1 ulcer in my pouch but the biospy said it was normal, I am not taking any meds for my pouch. 

Most of the time it is quick transit time like a minute, very rarely I stay on the toilet for more than 5 minutes. Everything is pretty quick. I use wipes. 

When I had an ostomy, I suffered many blockages even when I was not eating. The doctors/surgeons said I have very thick/muscular abdominal walls so because of that I suffered many blockages. Not many people are skinny/muscular when they get ostomys so my case was very rare. The surgeons even tried to open up the stoma surgically to get things moving but unfortunately that failed. I had to have a catheter in my stoma 24/7 for two months until takedown. Otherwise I would suffer obstructions/blockages.

I honestly wish the ostomy would have worked out but I guess I was not meant for it. I am much happy with my J-pouch.

Anymore questions??? 

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