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Reply to "Jpouch issues"

fusion,
I am in no way ready to ditch my j-pouch. I've learned how to control my problems. At first my local doctors didn't know how to diagnose and control them. There are people, many on here, living with more problems and taking more medications than I am. Many of those with chronic pouchitis constantly rotate antibiotics.

Since my Mayo GI diagnosed me with IPS vs Pouchitis I take antibiotics much less than I was. Since I have gotten my c.diff under control I don't take antibiotics for it. I believe the VSL #3DS and s.boulardii probiotics I take daily keep pouchitis and c.diff away now.

I do need to use topical suppositories for cuffitis but as long as I don't miss taking them for several days it is manageable.

It has taken me almost 3 years to learn all of this. I see you had your take down in April of this year. I hope you are sure that your pouch is not just still in the healing process before you give up on it.

I've been told I have a well constructed and functioning pouch when performing pouch scopes. The only visible and biopsy problem is in the cuff. The pathology reports clearly state Ulcerative Colitis. They call it cuffitis but lets call it what it is, it's Ulcerative Colitis ON the cuff. They lied to me, I was not "cured by the operations."

I am going to leave well enough alone, for now. I had horrible dehydration problems with my loop ostomy. My diet is adjusted, I take around 4 Loperamide capsules, 4 Norco, 1-2 dicyclomine, 1 VSL#3DS and 2 capsules of s.boulardii along with my vitamins and supplements daily. I also have several other autoimmune diseases and syndromes to manage as well.

When grandma said to make lemonade when given lemons I never knew how much lemonade I'd be making.

We are all different, but alike, and each need to make our own decisions.
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