Sounds like a mess. I lasted about 18 months had pouch disconnected and 6 months later excised. It sounds like your problems are basically inflammatory in nature and therefore you have to get the inflammation under control. Really only two options drugs and surgery (diet might help some). Generally one exhausts the drug option and then goes to surgery. What exhausting the drug option means is different for each of us. Once we start messing with our system there are no guarantees but my end ileo has really freed me, I basically can do anything I want. That was not the case with the J pouch. Yea I would rather have one of those good functioning J pouches but compared to the J pouch I had its like a cool breeze on a hot summer day, wonderful. Tincture of Opium might make your life a bit more bearable.