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Reply to "Jpouch issues"

MK, I have called my GI and emailed a reminder sheet of what I have tried and that I need a binary decision tree of the path forward. BAsicallly, try this and expect this, if not working then try this and expect this, if not working try this . . . I cannot continue to get poor sleep and be non-functionaly from late afternoon until I go to bed. I will not be taking immunosuppresent drugs to "save" my jpouch. I tried Remicade when I had my colon and no response. I am allergic to Methotrexate. Dialing back my acitivity is not by choice and it has been this way for 5 1/2 months. I just need to get on with life. Also my GI said chronic pouchitis has been linked to the development of Crohn's. I had a clear clinical diagaonsis of UC and geneitc testing which came up as UC (other test result possibilities were Crohn's and General IBD).
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