Reply to "J-pouchers in London"

Hi Dean, I understand why you would opt for the pouch surgery. I agree with Claire that you should very carefully consider it. I would seriously consider whether your body has healed up enough from the trauma it went through when you were sick. Enough to withstand more major surgery in January next year. You were so sick, and I'm so glad your feeling better, but you have to think about what your insides look like, if all that inflammation, scaring, abcesses etc, were all on the outside of your body, what would it look like now, would it all be completely healed up? Your going to be statistically more likely to have complications with infection because you've had Sepsis before (me too) so whatever surgery you go for, give yourself some more time, time to heal, time to reflect, time to get over what you've been through. In the meantime, if I were you, I would try to access your local IAPT services via your GP (access to psychological therapies) and explain that you need some counselling in order to talk about what you've been through, and to be able to ensure that your not jumping into agreeing to more surgery because your hoping it will solve everything. Just speaking with someone outside of your family and friends can be very helpful, and good for some different perspective. There are counsellors that specialise in chronic illness and health trauma. This is just a suggestion from someone who has been through a very similar traumatic chronic illness like you, and who went from being very well to very ill in a short space of time, like you did. You, Claire and I are all in our 30's (I'm now 35) and it's just not fair that we've been through what we have. But once you've had the surgery there's no going back, just make sure your not jumping into it too quickly hoping it will solve all of your problems, because sometimes some healing can come from time off from surgery, and speaking with someone well qualified and 'out of the loop'. If your doctors are telling you that you will have healed up enough, ask for an MRI scan and some blood work to prove that nothing is leaking and that there is not too much internal scarring, strictures etc, that might complicate further surgery. Get them to PROVE what they say to you. I have a stricture that is now very problematic, that was there before surgery and the surgeon knew about it, and still did the pouch surgery. Now a second opinion has revealed that wasn't such a good idea. So what I'm saying is, don't leave the surgeons to consider everything for you, they are not fail safe. I wish you all the very best, keep well and make sure you get all the help you need from the NHS. 

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