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Reply to "J pouch with Fistulating Chrons"

YES!!!! OMG, hear ya, I feel ya...

About 2 & 1/2 years after I got the Jpouch (surgery done in '98 - before there were biologics - FDA approved Remicade in ~ 2000, when I was 27).

So the pain was soooooo excruciating (I was gulping Tylenol 3 by the fistfuls for a few weeks - it was SCARY and HELLISH), so as much as I wanted to keep the J-Pouch, I "begged" my colorectal surgeon for (surgical! lol) relief, so within the week, he operated me in Nov of 2000 (the reason I remember exactly when it was, was that I was recovering from the reversal surgery in the hospital, and I was pissed off that I was in hospital on Nov 4, so I wan't able to vote in the crazy Gore/Bush election

But the good news is that after surgery, I was immediately out of that excruciating pain (obviously, only had pain from recovering from surgery), with the temp ileostomy. But about 9 months later, my fistula had healed, so my surgeon was able to reverse the reversal (lol) and I was fine ... for many years ...

GOOD LUCK, STAY SAFE and HANG IN THERE - It will get better!!!!

Kath

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