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Reply to "j-pouch vs Ostomy"

Whatever you decide. You will learn to adjust.

I ended up with an end ileo. Never in my wildest dreams would I think I'd be here. But it's ok.  I adjusted quickly.

The J pouch never worked like it should. Long long story.

I had to have it removed.  And yes. It's alien at first. The end ileo. But after awhile it just becomes part of who. You are and what it is.  One.

As for supplies as mentioned above. I ordered stuff while working with good insurance so I have enough to last for many years as I only change once a week. Or more if I leak. Which doesn't happen often.  So a box of ten bags and wafers lasts more than two months. I have stacks of supplies.

With either you have to adjust your diet. I found that with the end ileo I can eat almost anything. My j pouch was sensitive to stuff that I can eat now.

It all comes together in time. If your pouch works it's the same as I read in here.  Time. It can be your best friend.

I wish you the best either way.  It's not a situation any of us want to be in but we end up  there and we have to figure out what's best for yourself.

Then as with myself you can move on and enjoy your life. There is life after you can get something to work. I found my way. It was a long road. But it's all in he past.

Keep this in mind.

I have an end ileo. But my rear end was kept intact.  I still have all the gear to have another j pouch if I ever want to try it again. Which I won't. But keep in mind they can leave everything in place if you don't like the end ileo.

Richard.

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