Reply to "J pouch ulcer"

You aren’t going to lose your Pouch. Answer is yes it presents clinically like this with either a Crohn’s diagnosis or an uncertain diagnosis and no or minimal symptoms and life goes on. The chances of the biopsy results being positive for something other than inflammation are slim. I do not understand how or why people consistently come on this board and equate a Crohn’s diagnosis with the sky falling and loss of the Pouch. It is nonsense. You treat the inflammation and live with it. I have been doing it for 25 plus years and the last 10 under a Crohn’s diagnosis. Nothing has changed! BTW I also have scattered inflammation in the neoterminal ileum, the J Pouch inflammation mostly cleared up after I started Remicade. Remicade may be in your future but loss of the Pouch is not.

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