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Reply to "J Pouch Tip leak"

they found mine in February 2014. After months of back pain and sharp zaps down my legs I had an MRI. I had a pretty bad spinal infection from the leak that could have paralyzed me if not found soon enough. They unhooked and back to ileostomy. Dr Shen my GI tried a few scope proecures with bear claws and then a Fibrin glue was tried and an actual open surgery to sew off the tip of j pouch and everything failed. I am going for a total pouch redo/revision in October with the great Dr Remzi at Cleveland Clinic. It was a very difficult decision especially after all my issues, but if it can be done correctly it would be by Dr Remzi. If he could not do it I would stay with a permanent ostomy.

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