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Reply to "J pouch surgeries-timeline"

Nora, you sound like my son!  He was 23 at his first surgery.  He did not handle the ostomy well at all.  When he found out it was coming back, I must say, he handled the news well. It was done in March.  This time, I said to him and I'll say it to you.  Don't let this define you.  It is not who you are.  You can do everything you did before.  I even got him to go to Disney World in May for 6 days.  He is doing a million times better this time around.  He changes it by himself.  Last year, I had to do it.  It is not the worst thing in the world look at it that way.  I think the j-pounch is worse!  He was running to the bathroom all the time, and never got any sleep.  So find a silver lining and be grateful for it.  I made Jeffrey do that, and thank God, it worked for him.  The silver lining may be that your alive, you don't get consipated, or maybe you are sleeping better.  Find something, but don't let it define you.  Everyone hates the darn thing, it is annoying, I'll agree.  But it is your new reality, unfortunately.  My 92 year old father just can back from Europe and he has had a permenant ostomy for 40 years.  He still complains about it occasionally, but he can do what ever he wants, even travel abroad!  Acceptance is hard, but once you accept the situation, you will feel a whole lot better.  I noticed that with Jeffrey.  Once he accepted that it had to come back, he has handled the whole lousy situation amazingly.  And you will too!  Have faith, think positively and get healthy.  That's the most important, getting healthy!  Good luck!  

 

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