@THE KID posted:I can appreciate where you are coming from Lauren and have considered that option. I need to look at all of my options and considers the risks associated with each of them before I can make a decision. I have not received treatment for 27 years nor have I been seen by a specialist for my j-pouch regularly. That will change going forward. I want to be sure my original diagnosis is correct or see if I do actually have Crohn’s. Without a conclusive diagnosis, I can’t feel confident in making any decisions. If the specialist infers that an ileostomy is safest and most reliable option to improve my quality of life, I can rest easy knowing I explored all of my options. I don’t like feeling I am at the mercy of a disease. At least to some degree I will be empowered to choose how I will live with it. Up until this point I didn’t get to choose my stoma sight which is too low. It was originally placed low because i was young at the time and it was only temporary while my j-pouch healed. During the recent emergency surgery the surgeon just used the old loop diversion stoma from 1993. It would need to be moved to a better location to create an end stoma. This is a process, and I know I will get through it.
I totally understand everything you said! If you feel that is right for you, I support it!! How old were you when you got your first stoma at the lower sight???