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Reply to "J-pouch Salvage"

@THE KID posted:

I can appreciate where you are coming from Lauren and have considered that option.  I need to look at all of my options and considers the risks associated with each of them before I can make a decision.   I have not received treatment for 27 years nor have I been seen by a specialist for my j-pouch regularly.  That will change going forward.  I want to be sure my original diagnosis is correct or see if I do actually have Crohn’s.  Without a conclusive diagnosis, I can’t feel confident in making any decisions. If the specialist infers that an ileostomy is safest and most reliable option to improve my quality of life, I can rest easy knowing I explored all of my options. I don’t like feeling I am at the mercy of a disease.  At least to some degree I will be empowered to choose how I will live with it.  Up until this point I didn’t get to choose my stoma sight which is too low.  It was originally placed low because i was young at the time and it was only temporary while my j-pouch healed.  During the recent emergency surgery the surgeon just used the old loop diversion stoma from 1993.  It would need to be moved to a better location to create an end stoma. This is a process, and I know I will get through it.

I totally understand everything you said! If you feel that is right for you, I support it!! How old were you when you got your first stoma at the lower sight???

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