Reply to "J-pouch Salvage"

Hi Kid,

I am sorry for you - you have gone through hell - but you sound tough and you will get through this. There are some very experienced JPouch surgeons that can reconstruct problematic JPouches. They typically operate out of big JPouch clinics like Mayo, Cleveland clinic or NYU. I don’t know if you can salvage your JPouch, but I would look for consultation with one of those large outfits. As far as Crohn’s, I hope you don’t have that in the JPouch, but I wonder why it would take so long for it to show up so aggressively. In the long run, if you had to go with an end Ileostomy- many people do great with it. I was sick for exactly 25 years with a bad colon, took every drug known to man, finally went for a JPouch surgery this year. My surgeon is Dr. Feza Remzi at NYU - I love him. I am just finished step two - and living okay with a loop - other than dehydration. He may be a good guy to check out. Best Doug

10/12/207:47 PM

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