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Reply to "J pouch runs life as well"


I'm so sorry to hear what you are going through. It pains me because I went through it too and I know how bleak life can seem. Everyone you see going through their day without even thinking of a bathroom while it is running your every day life. It really gives you a new perspective on everything.

I don't know how long it's been since your takedown. I had what you had for about 1.5-2 weeks. Then I started taking 3 Imodium a day (2 in the morning one at night) and it made things get more bearable. For weeks 2-5 I went about 6-10 times during the day and 1-2 times at night.

Then I developed pouchitis (i might have had a simmering pouchitis since the beginning) and went on Cipro (2pills/day for two weeks).

This is when the improvement really happened. I actually have many days when I don't think about even having a j-pouch!

My doctor decided to taper me off cipro for some reason (i'm not questioning him, he's rated one of the best doctors in america for GI) so right now i'm on one pill every other day as well as my 3 imodium/day.

I'm 3 months out of takedown, and even tapering off the cipro things have remained wonderful (and I ask God that they continue to do so).

Up until I got on the cipro, the imodium was having me going 7-9 times a day and on average one a night. Now i've been going about 4-5 times a day and sleeping through the whole night. And i've been eating anything as well as exercising.

Maybe talk to your doctor about starting antibiotics depending on how far out from takedown you are. and if you are not, maybe get on an imodium regimen.

Keep your head up, and know that every day you get through is a day you get stronger. And when this settles down for you, which it will, you will feel like you can do anything.

Hang in there.
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