I'm very sorry to hear of your difficult situation. Living with pain is inhumane. I hope you can get help soon. Do you have surgery scheduled?
I've been living like this for about 20 yrs. I'd been telling drs that my j-pouch had moved and that it felt like it had fallen on to my pelvic floor. Every dr said, that's not possible. Then I went to the Cleveland Clinic and they confirmed what I'd said plus even more damages.
I am going down to the hospital on Tues to be admitted and then when they feel I am up to it they will proceed with the reconstructive surgery.