Hello. Iv had my j pouch for 32 years and it’s been amazing. Some pouchitis/ blockage/ abscess in the past but flagyl and cipro got me better. I have now got some joint issues, pain /inflammation and been on monthly infliximab infusions but currently taking Mercaptopurine and sulfazalazine/hydroxychloroquine which have kept me well but now in hospital with severe abdominal pain all low down and all across and having scans, camera etc to see what’s going on but I’m terrified of losing my pouch. The dr said problems can happen because of its age but I’m just praying they can get me sorted.
I’m not sure if long term cipro and flagyl will help but after my camera hopefully tomorrow they will look at treatment. It’s scary - I really want to keep it and not end up with a perm ostomy.
is there anyone had a j pouch longer than me ?
I’m in the UK and under Manchester royal infirmary. Currently in Chorley Lancs Hospital. Amazing doctors at both hospitals. I’m so lucky to have these.
Would love to hear how others are getting on.
Thank you.
Linzalisha 💕💕