Reply to "j pouch in one surgery..anyone??"

Hi, WorriedMom,
I am also a worried mom. My son was diagnosed with UC at age 13. At first sulfasalazine worked. Then about 1 1/2 yrs later he started to flare. Nothing worked- steroids, remicade, suppositories, antibiotics, diets etc, and 2 hospitalizations. He got TPN in a PICC line, then a laproscopic colectomy and ileostomy last November (age 15). At that point he still had his stapled rectal pouch. Nine days after his colectomy he needed emergency surgery for a complete small bowel obstruction. At that point, we decided with his doctors to wait 8 months before getting the J pouch. He was so weak, underweight, and malnourished. He had his rectum removed and the J pouch June 24 of this year (16 yrs old). It was one step (2 if you count the colectomy). No temporary loop ileostomy.
He is going to the bathroom about 6 times/day, but still has a lot of discomfort before going. Eating stimulates him to go. He also sees blood about 1/3 of the time. He's not been able to gain weight (5'8.5", 111 lb), and doesn't have a very large appetite. He's in school full days (11th grade), but still trying to complete 10th grade with tutors. He's also tired all the time-- he's up at least once in the middle of the night to go.
I hope your son improves soon! Best wishes!
Nan
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