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Reply to "J pouch gone, hello Barbie butt"

I’m happy to hear that there’s no infection!!!!! Not happy about the mucus - I bet that’s what mine has been doing too. LOL I am only getting 1-2 day wear time because of leaks but it doesn’t look like output leak. It looked like a crazy amount of puss but then also a light brown/reddish colour that’s hard to explain. I have been so confused. I bet it’s doing something similar (at least in one spot that’s always been trouble). 

re hospitals - I have tried numerous times to change to somewhere closer to home but they always turn me away. That said, I have only “tried” when I’m in an emergency or urgent situation. They always tell me that my medical history is too complicated and I need to be seen by the hospital where my surgeon is. I have been brought to tears by really really mean ER docs on this topic - As if I need a lecture when I’m in agony. They just put me in an ambulance and send me on my way.   Maybe you will have better luck than me if you go after your post-op follow up and things are more settled. Also, maybe it’s easier to switch docs/hospitals in the US (I’m in Canada). Just a warning that you might have to face some push back on switching hospitals (sometimes I think they are too lazy to learn a new file lol). Fingers crossed because that length of a drive is not only extremely time consuming but also incredibly draining and for things like scopes it seems unnecessary.

On a somewhat separate topic though - I have UC so I don’t really know much about Crohn’s - but can scoping when there’s no likelihood of active disease make your body angry and trigger an inflammatory response leading to a flare? I’ve always wondered this. 

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