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Reply to "J pouch gone, hello Barbie butt"

Thanks! I’m going to ask about this mystery drug and also buy lots of gum. Learning from my surgical history I know that I will not be able to limit the pain meds and in fact know that this will be the most painful surgery yet. Plus this will be my 7th surgery and I know I have A LOT of adhesions too so I really really hope I don’t have to go through what you went through. I am so sorry you had to live that!

On a separate topic, I have a “closed loop” ostomy. I had an open loop, but I was convinced that my leakage was a result of output coming out of my stoma and going back in my loop, through the dormant j-Pouch and out my rectum. So during my last surgery my doc closed the opening to the loop, but in order to “feed” the j-Pouch and other relevant tissue, the beginning of the “loop” needs to be connected to a blood supply so it is still sown to the internal side of my ostomy. Maybe they did something similar with you. BUT in your case they needed to remove your j-Pouch that was farther down the piece of loop bowel - so maybe they left a “loop-stump” for lack of a better term so as to not disrupt your perfectly functioning ostomy. Maybe? 

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