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Reply to "J-pouch friends-I need your help!"

Hi Lisa,

Have you tried Humira yet? All my research and personal experience has found it (and some other biologics) to be far superior to Remicade. Humira is made using human protein whereas Remicade is mouse protein. Remicade was a waste for me. It stopped working after 2 infusions. I have the exact same diagnosis as you. I have had my j pouch for 5 years and last year out of nowhere I started getting fistulas. My Promethius was "indeterminate", but it's crohn's...I know that.

Humira is something you can inject yourself, which for me is far easier than sitting through an infusion.

However, Remicade works great for some people, I don't mean to discourage you, only to say that other biologics may work better. It can definitely require more than one infusion.

I know how hard this is...it royally sucks. All of it. My life/health is far from perfect, but I want you to know that my "miracle" drug was Humira, not Remicade. I am glad I chose not to let my GI force me to continue with Remicade and I proactively chose to try Humira instead.

Good luck and keep us posted. Please PM me if you want to talk.

~Tammy
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