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Reply to "J Pouch Fears - need support please"

I don't think I can really add to all of the above but ha, I will anyway! It's one of those decisions that seem like an either/or. I get an end ileostomy or I get a j pouch. In my experience, the end ileostomy was quite manageable. The loop was ongoing hell. The j pouch was also very challenging and I just wanted to a) go back to the end ileostomy or b) just go back to colitis for the first 4 months at least. However, it certainly improved but really improved and I am now grateful that I did it (j pouch). However, if it became extremely problematic I assure myself that I really can go back to the end ileostomy if it comes to that. I guess what I'm trying to say is you might regret not trying the pouch but if you end up regretting the pouch it doesn't mean it's forever (but  give it a year before deciding to give up on it!)

I found  that neither  Imodium or pain meds other than regular Tylenol were very helpful but I sure would not want to go without psyllium (metamucil). But your doctor will guide you on those.

We are all very different and will experience things differently... output, pain level and tolerance, what we can eat/ can't eat (for example re above post, fruit juices and potatoes are both troublesome for me) You'll find your way I'm sure.

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