@Doug K posted:Jaydog - you are a saint. I had the end for a year and was super happy - but also knowing that I was going to get it off soon - I wonder if it was not a fair judgement. I am six weeks out and struggling. I hear things slow down once you get hooked back up. I just am trying to stay positive, but it’s not in my nature after 25 years of being sick. Who is your surgeon?
Ya I was struggling bad for the first 5 or 6 weeks then I kinda figured out my situation. I was constantly leaking and I was in huge amounts of pain because of my skin burning. I change my bag every 2 day no matter what. I could probably go 3 days but why risk it. Like I said at this point I'm 3 weeks out from my takedown and I can't wait.
My surgeon is dr valente from the cleveland clinic and he's been great. He didn't do my first surgery but he did my second and he'll do my takedown. Just stay positive. Your mind can be your biggest enemy or your biggest asset. You are less than 2 months away from getting rid of the stupid temp illeo. It will go by like nothing and soon this will all be a memory and you'll be helping someone else on here.