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Reply to "J Pouch Fears - need support please"

I had high output with my loop and so many issues. In fact they had to delay my takedown surgery for 5 days so my skin could heal because my bag would not stick, just constant leaks the day before. It was horrible. Metamucil helped with the loop. I had takedown 8 months ago. Has not been perfect, few cases of pouchitis and I'm getting scoped on Nov 5th to see what GI recommends to improve all around function. However, today has been a great day! I'm at average 8 -10 times a day, which sounds like a lot but is really very manageable and expected to improve. I rarely use immodium or any meds at all. Metamucil has not worked well for me with the pouch, seems to increase my output. I eat anything except raw veggies and salad, up once or twice a night, rarely watery stools. Generally applesauce consistency. In my experience the loop is no indicator as to how your pouch will function. Go for it and keep in mind it takes time, experimentation and patience . Month to month improvement!

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