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Reply to "J pouch and cancer"

missm 

You seem to know so much... want to come out to Texas to tackle this with me?  Lol. Are you still taking Remicade after your J pouch surgery?”

MissM,

My J Pouch surgery was in 1992, around 9 months after dysplasia was found in my colon along with inflammatory polyps. I got the J Pouch specifically because of the cancer risk. I was also told, at the time, that after 20 years of active UC the cancer risk went up dramatically. My then very conservative GI doctor urged me to have surgery, and that is when I knew I needed surgery.

 I didn’t start taking Remicade until 2015. Remicade didn’t exist until many years after I got my J Pouch, otherwise I might not have ever needed surgery, and I certainly would have been on it had it existed when I had UC. It has cleared up most of the inflammation in my J Pouch. You can have a good quality of life and live with “smoldering” inflammation that is being controlled by meds.

The only biological drug that existed in the early 1990s was Imuran. Imuran is a drug they tried me on but it sent my liver chemistries through the sky and I had to be taken off after a month. It’s not as user friendly as some of the newer designer biological drugs now available on the market. We IBD sufferers had less options back then. But I still survived. And I also survived thyroid cancer as well.

 

Last edited by CTBarrister
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