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J-pouch

I have been having trouble with my J-pouch. Having constant infections, limited to what I can eat, flare ups a lot since the current change in weather. 

I saw my PCP a couple of weeks ago and mentioned my pouch and said I have never even have seen a picture of my pouch before. He told me to pull up a chair and he showed me!  I have had this pouch for 4 years now and I am still having trouble.  My picture showed the pouch going straight down. I could not believe what I saw, I said no wonder why I am having problems. My family doctor did day now I am not a gastrointestinal surgeon but from looking at this it looks like there is no J at all on this picture.

Today I had a visit with the gastrointestinal department and he stated this is normal, now earlier this year I was hospitalized for malnutrition and the doctors said I needed to do something with this pouch!

I am so upset and dont know who to believe here and all I want to do is to just feel like a normal person again!

 

Help Please

LJK

 

 

 

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