Skip to main content

Reply to "Issues adjusting to new J-Pouch"

Like Connie, I have never asked for advice from a forum group. But I am at my wits-end! I have had my J-pouch since 2008 and continue to have severe internal pain and the inability to empty my pouch (which contributes to the pain, I am sure). My surgery resulted in ani-levator spasms (a complication of surgery) which causes severe pain to the pelvic floor. Added to that, I find very little that I can eat.  The banana, rice, applesauce, toast regimen does not seem to work for me.  The only thing that I find I can eat is fish. I need help in reducing the acid-like internal pain which I believe is caused by stool in the pouch and learning how to empty the pouch without taking 2 hours to push even loose stool out! My doctors give me a blank stare when I mention the first and they can find no stricture or other reason for the pouch not to empty. I am working through the food issue one food at a time. But it is hard to know if the food is causing the problem or the levator spasms or something else.  I need to resolve the pain before I can identify which foods I really can eat. I would like to know if anyone has tried a bile binding medication in an effort to neutralize the bile acids and thus, reduce the acidity of the stool? Or maybe, there is something else that has been tried that does the same thing? Any help in this regard is greatly appreciated. Seven years and counting is way too long to be in such constant severe pain.

Copyright © 2019 The J-Pouch Group. All rights reserved.
×
×
×
×