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Reply to "Ischemic Pouchitis? Too many symptoms, Ideas Please"

Sorry for the late reply.

Jan: Thanks for your input. My doc threw biologics out the window because my CRP is normal and biologics failed when I had UC. Plus, I also do not have the classic signs of pouchitis. I did have urgency at one point, but it went away when I started pentasa. What plagues me is bleeding from the ulcers and the inability to eat. I had a sudden onset of malnutrition last year and have been drinking an equivalent of Vivonex now for about a year and a half. As I am in Japan, I do not think I will be able to go to the Cleveland Clinic, and I no longer have insurance in the US. I currently am trying the ATM treatment which has had success with treating UC. It is a combination of amoxicillin, tetracycline, and metronidazole taken concurrently. I hope to get some results and some relief. I guess I'm glad that I'm not always on the toilet, but on the downside, I continue to heavily bleed and am fatigued from not being able to eat.

Mary Ann: Thanks for your input. I have changed my diet a lot, but even with these changes I continue to bleed from the anastomosis. Actually, I find that whenever I eat a lot of protein is when I bleed the most. I have cut a lot of sugar out of my diet, but I continue to bleed, so finding a diet has been difficult to find. Every day is a hit or miss with food as I react differently to the same foods differently each day. Hopefully I can get some relief, and the bleeding to stop.

-Rina

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