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Reply to "Ischemic Pouchitis? Too many symptoms, Ideas Please"

Hi Jan.

I think my doctor is doing a "shot in the dark" approach. He has discussed my case many times with another doctor who specializes in IBD, and they both have come to the conclusion that my ulcers are not from an auto-immune response. I'm sorry I failed to mention that last post as it came to me after I posted it (and a mass jumble of language of trying to translate in between languages). I think that is the reason why he threw out biologics. He believes that it has more to do with the blood flow. Though, his theory keeps on changing as to why I have these ulcers because I neither get better nor worse in the 1.5 years he has done pouchoscopies on my pouch.

As for steroids, I currently am on an ointment-based steroid and have been for a little over a month. While I have seen less bleeding in my stools, I still have eating problems. I know it's not supposed to get better overnight, but I would have thought I'd have a little better response to it. I hope that in addition to the short course of antibiotics I can get some relief. Though, I will not be able to tell if it is the antibiotics or the steroids giving me relief.

Thanks for your opinion as always.

-Rina

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