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Reply to "Ischemic Pouchitis? Too many symptoms, Ideas Please"

My symptoms were similar, with upper abdominal pain associated with meals. I also had a lot of cramping, along with urgency. I did have classic frequency and loose stools too. I did OK with constant antibiotics in rotation. My GI also was not keen with me staying on them. I had already been on a variety of different biologics for my arthritis, but it was not controlling the gut symptoms. Finally, my GI recommended Remicade and Imuran. It is a hassle getting the infusions, but I have been in remission over a year now. I know Remicade was a failure for you with a colon, but something to consider now. Plus there are other biologics you may want to try.

Dr. Shen at the Cleveland Clinic Pouchitis Clinic has been getting some results with hyperbaric oxygen therapy for ischemic pouchitis, but it may be tricky to get and to get coverage for it, since it is experimental for pouchitis.

Jan

Last edited by Jan Dollar
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