Reply to "Is this pouchitis?"

grandmaof1Member

Kk- my cuffitis is very painful with the urge to go. My back hurts so bad. Sometimes I sit in the bathroom and just shake because it feels like I have to go. I am on Canasa suppository and a new one called Tacrolimus 2 mg suppository 2 times a day. It is helping but not as it did at first. It has to made at a specialty pharmacy and our insurance doesn’t cover it. That is why many doctors don’t use it anymore. So we pay out of pocket. I just had my yearly scope done. Everything else is fine except my cuffitis. I have had it since 2018. I am almost ready to go to a bag. The pain and the liquid diarrhea is so unreal. My GI doctor said it’s like just like UC. It’s exhausting to have.

What do you do for it? I’d love any new advise. It’s so appreciated.

10/10/203:24 PM

<ul id="{%=id%}ButtonGroup" class="button-group h-popup-buttons even-button-group even-1">
    <li id="{%=id%}Okay_buttonContainer"><a id="{%=id%}Okay" href="javascript:void(0);" class="button success no-margin-bottom h-alert-modal-ok-button" role="button">OK</a><script type="text/javascript">
        (function() {
            function {%=id%}Okay_click(event, data) {
            {%=id%}Popup.hide();
        }
        
                $('#{%=id%}Okay').on('click', {%=id%}Okay_click);
        })();
    </script></li></ul><a href="javascript:void(0);" class="close-reveal-modal" aria-label="Close Modal">&#215;</a><div class="last-modal-focus focus-utility-element" tabindex="0"></div>
</div>
<script type="text/javascript">
        (function() {
            {%=id%}Popup = new SS.Popup.ModalPopup('{%=id%}');
        })();
    </script>

Skip to main content

Membership Required

Remove From Your Block List

Manage Follow Preferences

Block

Please wait...